Talking
without swallowing is the problem. Swallowing uses a lot of the same
muscles. So, the thinking goes, if a person can talk, that person should
be able to swallow. So this is troubling when I don't swallow.
My answer comes from years of early intervention: oral aversion due to a medical condition. I was a program manager if that means anything.
How
long has it been since I have eaten? I haven't had food by mouth in 14
years. After I had a brain bleed in 2002, a stroke, I had what I call a deep coma
where my eyes were closed for 5 weeks. A feeding tube was placed at that
time, by cutting a hole directly in my abdomen.
I
opened my eyes around mid-January. I transferred hospitals around this
time. I was tested on swallowing at that second hospital. For some reason I
remember Jello coming out my nose. I thought it should have been green
Jello. It was red.
I
was made NPO at this time. It meant I was to have no food by
mouth. My coma went from closed-eye to open-eye. I was made vegetative. A bit later, at that same hospital, I started making sound. I had
been silent for months. Talking had been given up on, and a computer
program was being tried on me. (As a side note, it was head activated. I
used my head to hit a switch. I couldn't move my arms.)
All
planning had to be changed. I went from non-verbal to verbal. I only
got a few weeks of speech therapy, then I had to move. My private
insurance ran out because it had what was known at that time as a cap.
It is a political issue that may or may not return, but I don't have
that insurance anymore.
I
moved around to different places, always remaining NPO, or no food by
mouth. Occasionally I got something to taste, but was never fed by
mouth. I taught myself how to talk. I had some training as an Infant
Specialist, but I was not a speech therapist.
When
I moved to the town in which I currently live, I got a few speech
sessions in a neighboring town. That therapist got me to do a few sips of water. At
my last session, I successfully did Ensure.
Four
years ago, I had a swallowing evaluation done at this local hospital. I could not swallow food. I was still no food by mouth. Recently I was
tested again. I have a feeling that the limited speaking on YouTube
videos and these essays have sparked that. Again I did not swallow.
For
some reason these swallow tests are being used as a test of
consciousness. I did not swallow, so therefore I am not conscious.
Some
people are wondering why did I swallow 32 years before the bleed, had a
break, and now can't swallow. The answer is I am starting that out all
over again. That's what talking was...starting out all over again.
Something
occurred after my stroke, probably within minutes, that I say was
probably a release of my body's own Adult Stem Cells. These stem cells
would not only repair all cell damage from a stroke, but it would also
wipe clean the past 32 years of learning. From looking at pictures, the
last 32 years of aging may have also been wiped out.
From the way that I explain it, not swallowing doesn't sound weird. It's an aversion of food placed in my mouth. All this takes to remedy it is some speech therapy. (It would have to focus on swallowing.)
The following video shows me speaking.
The following video shows me speaking.
*NOTE
As of 1/17/2017, my feeding and all supplies were restored by Medicare.
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