Bad Blood

Neural repair was intentionally left out by the government. They did not perform the surgery and refused to acknowledge the university that did, Stanford. There was "bad blood" already there. The surgery is described,  http://thoughtfulveg.blogspot.com/2015/08/avm-bleed.html

There was a "trache" in my neck. This was the tube hooked to the ventilator. I hadn't used this machine in a while. It was obvious I was fine without it and the tube should be removed. The argument from Stanford was the government program better do it or they will! This issue was completely unrelated to neurosurgery. (This was the "bad blood" between them.)
 

Remember, the neurosurgery was already being performed as if I was an indigent. The government refused to do anything with the AVM in my head. I had to be seen at Stanford through the free clinic for people with no insurance.

   

Stanford represented best practices. The government program was what had to be done on a shoestring budget. Animosity may have been local, but it was the same type I had seen in other areas.
 

This quote applies,
 

The government program seldom made changes or allowances. Programs were not curtailed to individual needs. It was a cookie cutter. Everyone got the same thing. A program like Stanford would come along and stand up for one individual. In Stanford's defense, though, they had done it many times for many individuals.

They saw the individual getting trampled.

 

 

My Mission: A Mission Statement+

I search for consciousness. Where do I start? You see I don't have mine.

Long ago I was in a coma. When I opened my eyes. I was out of it. I was out of it for years. My conscious was taken away on paper.

The paper saying my conscious was gone has become as permanent as your Social Security card. It's something permanent given by the government - society-at-large. I am asked what document needs changing. Well it must be a government form. I can only refer you to government.

My mission is to find my consciousness and have it reflected by society.

*Comatose patients do not get therapy. I am in an open-eye coma. I am not conscious. I do not receive therapy.

We Suck

This is in reference to http://thoughtfulveg.blogspot.com/2011/05/neurological-epidemic.html

When I say the government dropped the ball with me, I'll explain my situation, and then let you come to your own conclusion. Some may have harsher words. I use myself as the example, but there are many Americans with whom the government "dropped the ball." Many of them don't understand why.

When I started I was working  I tell my story in http://www.nxtbook.com/nxtbooks/aha/strokeconnection_20090708/index.php#/10/OnePage Since I was working, I had good insurance. I went to a nice brain injury rehab connected to a hospital. But that insurance didn't last. Right before I left I started making sounds. This was a big deal scientifically. That hospital had me scoped - they threaded a camera down my nose to my voice box.  They were doing the scientific research. Then the research stopped. My insurance ran out. I switched to the government's Medicaid program (Medi-Cal in CA).

The government took over and I wasn't the subject of interest anymore. No more research. I began the "Medicaid Shuffle" - I moved from place to place as I wouldn't qualify because I gained more skills, or abuses removed me, or the economy forced the place to close. It was no longer about research. It was about survival.

So I got better on my own. I did my own research. I'm giving my knowledge to the others out there who also don't have anything. (Oh, and excuse me on the documentation. I did the best with what I had. This is all from a psychologist's point of view not only because of my background, but as a medical doctor I definitely wouldn't have access to equipment. The same goes for therapy-crappy equipment, not all the equipment I needed, and the lack of a skilled set of hands.)

I didn't even talk about Medicare. Hey, that's what everyone is working for. Well it's only a step up from Medicaid. It's crappy too. It's also government. In the next paragraph I mention the government dental plan. Medicare don't worry. You don't even have one.

To Medicaid (the government) research isn't "medically necessary", just like teeth. Toothache? Pull it. Put your food in a blender, stick in a straw and suck it. That should be the government's new slogan, "We Suck."

WE SUCK