Monday, November 3, 2014

You Talking to Me?

Imagine...a patient goes into the ER with her own equipment and her doctor's cell phone number. (The doctor was on vacation, and it was a Sunday also.) I had everything. I just needed skilled labor. It's okay that they didn't know what to do. I did.
It was worse when I couldn't talk. The Stooges was the norm. People knew what to do, but they didn't know they were supposed to do it. (Like when I coded but then opened my eyes. "Do you still want to be intubated?" I said "no." First of all, you don't intubate a conscious, talking person. Second, I coded? That was never addressed. Why did I open my eyes? Did these people also need to be told what to do? They were a specialized team.
Now I see what was needed...direction. Having the proper tools also helped.


"Talking to me" was a shock. My speech hasn't been that great. It was once non-existent. I listened to my daughter describe how I used to point out letters on a board (Speech Therapists, that's what this is...pointing out and pressing letters on an electronic communication board.) Before pointing, I'd blink.

I didn't have the behaviors. 
She says she was wired wrong.
I wasn't even wired.


I speak now, although there are times I am difficult to understand. Loved ones will take the time. Sometimes they will have me repeat it correctly. I was surprised when the GI Specialist called and wanted to speak to me.

I don't talk to people I don't know on the phone. There's a joke with my family that I speak Spanish. A person called once from my daughter's union to give the topic of the up-coming meeting. As soon as I opened my mouth, "Oh, let me go get someone who speaks Spanish." So now I speak. It's just a different language.

If you understand me, remember there were many takes, this was a good day,
and you took the time to listen to me talk slowly.

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