Thursday, October 9, 2014

Don't Get Your Hopes Up

Are you just fooling yourself? "Once confirmed, Angela Ronson, 'progress,' defined as the patient's conditions changes and she's willing to have it studied, would appear to be a valued & positive status upgrade."- Robert Demichelis II. The "progress" I've had has been going on for a long time. What would all of a sudden happen to change that to the progress is now recognized?

Some are excited over the fact I'm exhibiting movement on my paralyzed side.  This progress isn't something new. You are reading this typed with my other "paralyzed" hand. I didn't go to a therapy to get this hand working. I did this myself...mostly using marbles and containers. The marbles came from a recreation cabinet when I was in long-term care at a "real" hospital. No formal therapy. This is what I did years ago with special needs preschoolers.

Progress goes further than that. The big one I noticed was sound. I started making sounds like 7 months after waking from a coma. This is the deep sleep I was in. The government says I'm currently in a coma. I don't think so. I opened my eyes. I just couldn't move and that's what they call coma. I'm too slow to make deadlines, so the original diagnosis stuck. Now I talk. It's funny since I still have that original diagnosis. 

No therapy on that one. That's big. Progress can be heard. The government still has me in a coma, though.

I don't see this new movement I have making any changes. It should...but I don't see it. The government can be very slow. Don't get your hopes up that "this" will be the change. Change will happen on its own time. In the mean time, I will embarrass some people.

Some may think, "OMG! The real deal...savant syndrome." I refer you to the experts. Making diagnoses has never been my thing (and I've been in the position.) I'm not starting with myself.

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