Scott's Law

I never outright said the name Scott Routley, but I remember the case. I referred to it. I referred to a man in Canada.  

https://thoughtfulveg.blogspot.com/2015/09/my-situation-isnt-hard-to-explain.html

I was surprised to get a message regarding him.

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Routely was a man in Canada who was in a vegetative state. 

                                 

Mr Routley suffered a severe brain injury in a car accident 12 years ago.

None of his physical assessments since then have shown any sign of awareness, or ability to communicate.

But the British neuroscientist Prof Adrian Owen - who led the team at the Brain and Mind Institute, University of Western Ontario - said Mr Routley was clearly not vegetative.

"Scott has been able to show he has a conscious, thinking mind. We have scanned him several times and his pattern of brain activity shows he is clearly choosing to answer our questions. We believe he knows who and where he is."

https://www.bbc.com/news/health-20268044

Scott Routley passed away in September 2013.

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I taught myself to speak in order to say "No." Removal of the feeding tube is a big issue, but it wasn't this surgery that was planned for me. It was something else, and it really doesn't matter what it was for. I  think I surprised people. I blurted out "No." 

I remember the doctor and the Physical Therapist, PT, trying to change my mind. The name of the surgery didn't sound bad and it would have helped in the short-term. I  was thinking long-term, though. I'm not supposed to be alive now. They wouldn't have known this. Ask a PT now. They'd say I said the right thing.

What matters is that I said no. Surgery to remove the feeding tube is the same. It's a person's wishes, not the type of surgery that matters. The ventilator can also be included.

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I never taught myself to swallow. I didn't know I was supposed to. It sounds like I should have been given speech therapy. Medicaid does not provide speech to those not conscious. The diagnosis "vegetative" says the person is not conscious. I'm not conscious. I don't get Speech.

For the same reason... I'm not conscious... my feeding tube can be removed. Of course, I'll say "No" and that can't happen.

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Recently, JohnAllman.UK contacted me. He authored Scott's Law:  Talk to me, don't just starve me to death!

https://johnallmanuk.wordpress.com/2018/08/03/scotts-law-talk-to-me-dont-just-starve-me-to-death/

There is a movement in his country to stop the practice of removing the feeding tube to hasten death. This movement just isn't in this country, but many others.

The big deal will be determining consciousness. This is what people need to watch with me. I am yet to be determined conscience. A feeding tube can't be removed from a conscious person. Mine can't if I say "No." That's not feasible for the non-vocal.

I should be conscious because I write this, right? Well, no. I'm not conscious because I don't swallow.

Accept the writing, gestures and brain scans. That's a start. Nothing happens until this occurs. It's the person's wishes that matter.

I Should Get Services

To deny that I am conscious is only to hold back progress.

I, too, think I should get OT (Occupational Therapy), PT (Physical Therapy), and SLT  (Speech and Language Therapy), in addition to the nursing services I now receive. I can only forward this comment.

Obviously I am talking to you. If I was vegetative I wouldn't be able to do that. Vegetative is considered a coma with the eyes open. I am not in a coma. I am not vegetative. Something else has to be given as diagnosis.

I think my diagnosis as "semi-vegetative" has thrown everybody. It allows a vegetative patient to talk. Contrary, "Minimally Conscious" should have been given at that time. I doubt I am still minimal 15 years later. A whole stage wasn't tracked other than my posts. Someone better get these in case companies fold.

Even if my local university can only document, then they should. It is crazy that there is absolutely nothing other than what I do myself. 

My case isn't a right to life issue anymore. Now, it's to see how far a person can go. My issue has no borders. Other countries click this blog. This is for humanity, and humanity is losing out right now.