"As a consequence of her brain injury, she was unable to swallow using
conventional utensils, and like many Americans required nutrition and
hydration by feeding tube in order to live." https://www.lifenews.com/2019/03/29/14-years-after-they-starved-my-sister-to-death-we-must-never-forget-terri-schiavo/?fbclid=IwAR3J9S8A2Y14HpTt-XppmSMEGWlz1uXB4bFb45NpCA9FmwNTUsFv3ATjE2s
That statement could be me. I have a feeding tube. I quote Bobby Schindler. He's Talking about his sister, Terri Schiavo. She's no longer with us. Her feeding tube was taken. She was thought to have reached the end of progress.
The
government cut off providing the formula for my feeding tube. So, through a medicare
supplement insurance, I get my own formula and supplies. I pay for the supplement insurance and no one
else does. I won't depend on the government for providing medical
supplies. I don't trust them. They were going to let me die...all
because I talk and don't swallow.
Now you find me with a lollipop in my mouth at most times.
I get all kinds now.
I
use lollipops to get my mouth used to having food in it again. It's
been a very long time. It has been so long that some would say 'don't
bother.' I say it's just lollipops. I'm not doing a whole feeding
program.
Lollipops just aren't for kids anymore. Recently, a daughter gave me the following specialty lollipops,
Starting
on the left, the first two are Pineapple Upside Down Cake. This is not
standard fare. In the center is the jelly and the peanut butter of
Peanut Butter and Jelly lollipop. This is a two-sided lollipop. Second in
from the right is "The Bird is the Word" which is Fruit Loops, birthday cake, lemon curd and buttercream frosting. Finally, on the far right are two Canoli lollipops. Yes,
there is now such a thing.
My next venture is a margarita lollipop. It's been so long since I had a margarita.
_____________________
I once saw a speech therapist for a few visits. I was hoping to learn how to drink the formula in order to get rid of the feeding tube. The formula is now Ensure. So it tastes okay now. Swallowing my formula did not happen. I do not swallow enough.
The therapist thought I'd be able to do "pleasure eating." I had never heard of the concept before, but I liked the sound of it. Now that I have lollipops I understand. Certain flavors give me pleasure.
I looked up the concept. Pleasure Eating has to do with Mindfulness thttps://www.bestfoodfacts.org/mind-your-meals/. I do know that heartburn has nearly stopped since adding lollipops. My digestive system may be working muscles I hadn't been using. I only notice one thing, though- I don't have barf in my mouth.
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