"Thank you. You, too." I just placed my monthly medical order for my supplies. It's a common task. Other people with diseases have to order their supplies. For instance, that person you see on oxygen. The things needed don't magically appear. They are ordered, monthly in my case. My order consists mostly of my food. The person on the phone asked about my feeding tube and reminded me of the nutritionist on staff. I do fine in managing my daily heath needs. I'm also able to plan and care for my future needs by ordering ahead of time. I must be aware of my situation. I'm not classified as such, though.
So, the Centers for Medicare and Medicaid Services got back to me:
"We apologize if the response previously provided was for something that was already taken care of. You are correct that there is no rep payee and you still manage your own affairs."
I remain vegetative, yet can handle money? For years I have been dealing with the fact I am cognizant, but vegetative...and therefore I am a lesser person. It appears this will continue. You have the answer...I continue to be the talking vegetable. Nothing has changed. Social Security/the government continues to pay me, yet reserves the right to remove me from my home, and place me in an institution...because I am vegetative although able to handle to handle my affairs. They have to be safe in case I stop.
Government disinterest in my situation doesn't have to stop others from being interested, though. It actually opens my situation to the public. Technically, I am a free citizen. There is free enterprise, and my situation then becomes available to private institutions and individuals. In the meantime, I continue to document through photograph and narrative. As always, I stand behind open science. All I can say to the government is, "You snooze, you lose." Capitalism can take over now. (Capitalism is not a political system. It's an economic system.)
The step after this might be to contact the Social Security Administration. I don't feel like banging my head against a wall right now, though.
I'm attaching the interaction with the Centers for Medicare and Medicaid Services. It starts with, "We are very sorry you were misdirected so much. OCR made an error in referring you to CMS." They don't even know what I am supposed to do. All I can do is reiterate my very last statement in the e-mail:
Again, I am misdirected and it is things like this that continue to make it appear that I am the one who is inept. For some reason it is believed that a person in PVS is unable to recover mental function. I recovered that long ago. It has been motor function in my case. I continue though, to receive treatment as if it is my intelligence.
From:
To: "angelar70@att.net" <angelar70@att.net>
Sent: Mon, February 4, 2013 10:39:44 AM
Subject: changing your representative payee
Dear Ms. Ronson:
We are very sorry you were
misdirected so much. OCR made an error in referring you to CMS.
The only agency that can help
with your change of rep payee question is Social Security.
The below is from their
website:
“You have the right to receive
your own Social Security check unless SSA believes you are not capable of
managing or directing the management of your money.
If you have a representative
payee because of a physical or a mental disability, in order to become your own
payee, you must show SSA that you are now mentally and physically able to handle
your money yourself. You could provide:
a.
A doctor's statement that there has been a change in your condition and
that the doctor believes you are able to care for yourself; or
b.
An official copy of a court order saying that the court believes that
you can take care of yourself; or
c.
Other evidence that shows your ability to take care of yourself.
Note: If SSA believes your
condition has improved to the point that you no longer need a payee, we may
reevaluate your eligibility for disability payments.
You have the right to appeal
either the decision that you need a representative payee, or the person or
organization SSA has chosen as your representative payee. You have 60 days to
appeal a decision by contacting SSA. Please contact your local Social Security
office or call Social Security at 1-800-772-1213 for more
information.”
Health Insurance
Specialist
Division of Medicare Financial
Management and Fee for Service Operations
Centers for Medicare &
Medicaid Services (CMS)-- San Francisco Regional Office
90 - Seventh Street, Suite
5-300 (5W)
San Francisco, California
94103-6708
Telephone: 415.744.3671
Paper Fax: 415.744.2706
My direct paperless fax:
443-380-6248
Re: changing your
representative payee
| From: |
Angela
Ronson
| |
I am not changing representative payee. I don't have one. This was taken
care of yrs ago. http://thoughtfulveg.blogspot.com/2012/11/competent.html What
this says is I can handle my money, yet I remain vegetative. Social Security
pays me, yet reserves the right to revoke that, remove me from my home, n place
me in an institution. I have been in my own home since 2006.
Know that I made the above letter a public document, and any future e-mails I receive have the potential for being made public. Also, I am cc'ing this e-mail to various media.
Know that I made the above letter a public document, and any future e-mails I receive have the potential for being made public. Also, I am cc'ing this e-mail to various media.
For yrs I have been dealing w/ the fact I am cognizant, but vegetative...n
therefore I am a lesser person. Due to this prior treatment, govt communications
are being made public. It is unfortunate this behavior is not seen as
discriminatory.
We were responding just to a referral from the
Office of Civil Rights about the letter you had attached and provided to them
regarding a rep payee. The letter you sent to OCR dated January 24, 2013 was not
clear as it implied that the rep payee situation was not taken care of.
The letter n e-mail were made public, http://thoughtfulveg.blogspot.com/2013/01/regrettably-matters-you-raise-in-your.html n u can read them for yourself. A representative payee situation is never addressed.
My original statement to anyone medical:
I am vegetative, PVS. I know that this is unusual for you to be getting this, but technology now makes this possible. You will notice this complaint is all electronic. I have worked for years to get one finger to be able to type. The above goes to something I wrote. I have had a consciousness disorder. There is nothing wrong with my cognitive skills. I continue to have problems with speech and movement...not cognition.
Again, I am misdirected n it is things like this that continue to make it appear that I am the 1 who is inept. For some reason it is believed that a person in PVS is unable to recover mental function. I recovered that long ago. It has been motor function in my case. I continue though, to receive treatment as if it is my intelligence.
followup........RE:
changing your representative payee
| From: | ||
| To: | Angela Ronson <angelar70@att.net> |
We apologize if the response
previously provided was for something that was already taken care of. You are
correct that there is no rep payee and you still manage your own
affairs.
If there is a current Medicare
problem you have, please let us know and we will try to assist with
that.
Re:
followup........RE: changing your representative
payee
| From: |
Angela
Ronson
|
The letter n e-mail were made public, http://thoughtfulveg.blogspot.com/2013/01/regrettably-matters-you-raise-in-your.html n u can read them for yourself. A representative payee situation is never addressed.
My original statement to anyone medical:
I am vegetative, PVS. I know that this is unusual for you to be getting this, but technology now makes this possible. You will notice this complaint is all electronic. I have worked for years to get one finger to be able to type. The above goes to something I wrote. I have had a consciousness disorder. There is nothing wrong with my cognitive skills. I continue to have problems with speech and movement...not cognition.
Again, I am misdirected n it is things like this that continue to make it appear that I am the 1 who is inept. For some reason it is believed that a person in PVS is unable to recover mental function. I recovered that long ago. It has been motor function in my case. I continue though, to receive treatment as if it is my intelligence.
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