I tell how I communicated.
In
the hospital, I assume I was tested with a communication board. I
couldn't see one. Since I couldn't see a communication board, I failed the test. The hospital couldn't communicate with
me so I was labeled vegetative (PVS). This is unconscious.
A communication board can simply be the alphabet on a piece of paper. It can be mounted on a board.
Adjustments
weren't made for special needs. Educators are familiar with this and
the general population is becoming more aware. I am low vision. Vision
is now better than in the beginning of my recovery, but it is still low.
Imagine
a 3x5 card. Only one letter is on it taking up the whole card. My
mother didn't use a communication board. She had a stack of cards. My
eyes weren't good enough to see the boards, yet. Of course I failed that
test.
Flashcards
used to teach the alphabet to young children are the same thing. She
would hold up one card and I would blink yes or no for it. She would do
this for every word. If a word had 5-letters, then she'd be going
through that stack of cards five times. That would be 130 eye blinks
from me just to get a single word out. As time progressed, my eyes got
better. I could see the letters on a communication board. I was able to
now use one! (Around this time, physical therapy had been getting my left
arm able to propel a wheel chair. I started pointing to letters on the
board with that same arm.)
My
mother is the only person who would do this style of communication.
Later, after I could say a word, I was at a hospital where I saw a
recreation nurse using a communication board to communicate like this
with a patient. That hospital unit soon closed. The patient would have
been moved to a nursing home and that style of communication wouldn't
ever occur again.
I could speak a word by then and went home. It was figured I would die. I didn't.
No comments:
Post a Comment