Manmade Miracle

 

My AVM that bled was in my cerebellum next to my pons. I remember hearing that anyway. You can forget seeing anything at that time back in the hospital. My eyes are better now. I can see big things in the next room. In the beginning after the stroke I was blind. At the rehab, they patched my right eye,

I had to have heard this at the rehab. They are the only ones who mentioned the pons.

Now we are talking pontine bleed. That's classic Locked-In Syndrome.

You might have to enlarge to read.

My AVM bled primarily in my cerebellum, then the whole brain. Now thinking way back to when I was in college, the cerebellum controls heart rate and breathing. I stopped breathing at a clinic. Records say that I was resuscitated at the trauma center.

I died at that hospital. Read the record.

Something had to have happened because I am alive and writing this. This characteristic about me is two part. First there is alive.  I believe writing is due to a second surgery, but the skill could not be seen right away. So much time has passed that the skill is attributed to miracle.

My heart stopped at the trauma center. They knew it was going to stop, so they did something to buy some time. They chilled me. I was close to frozen. I had to be a bit of a sleuth to figure this out. The records state that I was treated for hypothermia. My mother described that an apparatus was put over me to control my temperature. They did Whole Body Cooling! It worked.

I didn't drown. I did have a minor car accident, but I never went into the river next to me. It was snowing where I was. 

Freezing my body was at the hospital. They didn't freeze all the way, but my heart stopped.

https://thoughtfulveg.blogspot.com/2021/01/just-chill-therapeutic-hypothermia.html

Some will not see a connection of now to a surgery done years ago. It was brain surgery, though, and outcomes take a long time. Yes, everyone saw the immediate result, the removal of impending death. The AVM was removed but no one saw what grew there to take its place. I haven't even seen. I can only go by outward behavior...and that looks very good!

So dear US government, I am not vegetative and I am not about to die. The AVM was removed back in 2004 at Stanford. Nothing is there to bleed, now. You would know this if you read the records. You would know this if you didn't delete the records.

One more thing dear government, DO NOT SCHEDULE ANOTHER SWALLOW STUDY AND CUT OFF MY FORMULA. That last time was a fiasco. The formula is my only source of nutrition. Are you trying to kill me? This is written, not verbal, and there is no need to swallow. You never gave me Speech Therapy. Why would I swallow?

l

Just Chill: Therapeutic Hypothermia

That I am alive and talking is proof of the efficacy of this procedure. I attribute writing to neural repair surgery performed at another hospital. Writing could not occur unless I was alive. These two hospitals are responsible for the current outcome. Actions are dependent on each other. Incredible knowledge is due to a third source, or myself. It all makes the situation rather complicated. It all begins with freezing me. Other actions could not occur if this did not happen.

__________________________

I must have seen it on TV:  A person has a heart attack, or something and an ambulance takes that person to the hospital. There they freeze the person. Life-saving surgery is done and they live happily ever after.

__________________

 

Maybe I didn't see it on TV. I only know it because it happened to me in real life. Except for the "happily ever after" part, all that stuff happened.

I wanted to know what happened. I knew how to get and read records as I did this as a job requirement. I couldn't do this for a few years, though. I had tons of problems. (For the record, I've had experience providing care and developmental intervention.) I'd have to personally work on myself. I had a personal therapist.

Medical records read that I was treated for hypothermia. I was shocked. It made sense that I had Therapeutic Hypothermia.

I had a stroke and I stopped breathing at a clinic. I was put on a ventilator and into an ambulance I went. The ambulance drove down a mountain through a snowstorm to take me to a hospital. The hospital put me on a helicopter. I was flown to a trauma center. 

At the trauma center, I was cooled. I wasn't frozen all the way. My heart stopped at that hospital. I had to have surgery to stop bleeding in the brain.

Videos of this procedure are hard to find.

I had a procedure where my body temperature was lowered before surgery. They don't freeze all the way because that can cause complications. The process is called Therapeutic Hypothermia. 

What is Therapeutic Hypothermia?

In the above video, the woman keeps referring to babies. This process has been used more on infants. This video says 2018 as upload. My surgery was 2002. I bet that I am one of the first adults.

I type this with my pointer finger. It took me years just to be able to do that. Obviously, it has not been "happily ever after." It's been hard work for me. 

Body Cooling is done to preserve the brain. I got lucky. They chose the right brain. I was smart before, but this is shouting. The whole world can see it. Something happened.

  

You're only cooler if you are a cherry popsicle.

Staged My Phony Death

 

That was it! They staged my "own phony death."

They wouldn't admit that surgery worked, so they wrote down that I died. Actually, they wrote that I stopped breathing in 2005. I think I'm dead if I am not breathing.

I have one question dear government...

What happened to the AVM, the blood clot, that was in my head?

Dear ZDogg

 

This is an open letter to ZDoggMD regarding the show posted below. His YouTube profile says "Zubin Damania, MD. Stanford-trained doctor, entertainer, and host of The ZDoggMD Show.".

For reals? You're throwing your hat in and giving your opinion on consciousness? Good luck to you, I've been hitting at it for years. I've been named as not conscious for years now. 

Oh gosh, how did that happen? In 2002 I had a stroke. I was left in a coma. A month later I started  opening my eyes. I was not responding, so I was made PVS, Persistent Vegetative State. A week or so later, I'm responding to familiar voices by blinking. I still can't talk or see.  I can only move my head. Oops! I'm minimally conscious. This still can't be seen, and I can't say "Hey, wait!"

Too late. I was already made vegetative on government paperwork. It's also past the deadline. There's no room for late recoveries. That would be a miracle. Those don't exist in government.

This state is not conscious!

You can't get better, according to current theory. When I said "I think I'm getting better," to the doctor in the government program, he told me that I was imagining it. I verbally said it. I had been nonverbal. 

Remember when growing up being told not to drink beer because it kills brain cells? Those cells never come back.

This thinking was wrong. The study of neurogenesis grows, but this stupid notion still exists.

So I never got better.

In 2004 I had surgery at Stanford to repair my brain. I had to go through the clinic as the government refused because of the stupid notion. I got better for Stanford. I didn't get better for the government.

Thank you for addressing the subject. You will be listened to.

Sincerely,  

Angela Ronson

_____________________

Here is a 2nd letter.

1-22-2021

Dear ZDogg,

I see that you ended the Facebook group. For years I have been trying to explain to my Facebook followers that there is a whole internet out  there. Facebook isn't the only game in town. I like how you did this.  https://zdoggmd.com/social-dilemma/?fbclid=IwAR3SuZ1QOvDy36qBNNGtBXmjQQkT9ueoPjXrN0xv8Y2c8ORFcTvNy2OiHIk

I'm going to use names of social media sites, but I don't endorse any of them. As you can see, I have a YouTube site, but I don't primarily use it. Some folks may like LinkedIn. I've noticed quite a few brain injury associated persons over here. Twitter is still my personal favorite. As a side, MySpace still exists, but it is a shell of it's former beauty.

The take is that the internet is huge... AND I DON'T PAY FOR ANY SERVICES. So when I found out about your group and the supporter thing, I paused. I haven't  forked out any money, so far. I'm still thinking. The show is still publicly available. This is all I need right now.

Sincerely,

Angela Ronson

I'm Not Dying For a Drink

Re:  Dying For a Drink

Once upon a time...

.

A person in a coma has to be fed. They don't wake up  to eat and then go back to sleep. These people are usually fitted with a feeding tube, and the giving of nutrition becomes a medical aspect of their care. 

FEEDING TUBES ARE MEDICAL!

Formula is used for nutrition. The "drink" is this formula. Patients don't drink it at all. Rather, it is personally delivered by a  feeding-tube. A person dies without food. The formula has all the nutrients of food. If given the formula, a patient who cannot eat will live, usually. Other medical problems may occur, but feeding tubes are meant to avoid starvation.

My formula happens to be Ensure. It is sold at the local grocery store. In an emergency I could get some. The containers look different on the outside, but that is marketing. I get the wholesale medical cartons from a supplier, not the fancy bottles sold in stores. Marketing now has all kinds and flavors, but I take the good, ol' original. Going back in history, it may have been the original formula.

If I purchase, then I try to find coffee flavored.

I bought this on-line.

"Bleh," is all I can say about the unflavored formula given at one hospital. I get "You can taste?" Yes, I can taste, and tasting unflavored feeding placed directly in the stomach is not instant. I have reflux. I'll instantly taste it if it comes back up. It's usually vomit by then. Tasting unflavored formula and barf is not pleasant.

Recently I saw a science video talking about holes in the body. I guess if you rub a raw, cut clove of garlic on the sole of your foot, you taste garlic an hour later. In the same way, give me coffee flavor Ensure and I taste  cheesecake an hour later. I assume digestion has something to do with the flavor.

I use a feeding pole.

The formula has to make it's way into the body. This is how it becomes a medical procedure. 

The feeding tube is a port into the body through the stomach. Likewise, an IV is a port into the body through a vein. There also is special tubing and usually a bag to hold the substance. These are medical supplies and not food.

Sometimes there is a pump. I do not have one. I have a Feeding/IV Pole, and natural gravity becomes the driving force of moving the formula. 

There Is No Pump!

Learning to Taste

My favorite flavor was Butter Cream Frosting. I believe it was this brand, and I doubt they still make it. This picture was on E-Bay and the product is probably discontinued.

During 2003-2006, while still in the hospital, I taught myself how to taste. How you ask? I used the flavored lip-glosses and lip-balms for children. I had a ton. I couldn't eat. I'd put on a flavor when I had a tube-feeding.

Applying and opening/closing lip balm became Occupational Therapy. I was careful to remove lids over my lap. Retrieving a lid that rolls under something could be impossible.

_________________

I know how important the feeding-tube is for survival. 

1-10-2021 

I watch my feeding-tube like a hawk. I got it 18 yrs ago. I should have died 18 yrs ago. It kept me alive for 2 years while waiting for life-saving surgery. I breath on my own; I speak on my own; and I now write on my own. That feeding-tube has  kept me alive. (It's not the same tube. I periodically have it changed to prolong life.)  

https://thoughtfulveg.blogspot.com/2020/12/how-are-you.html

I know how to temporarily reinsert the tube until medical care arrives. I know how to provide daily care to keep it maintained. A person in a coma can not coordinate their care. A service coordinator is needed. Emergency services can be provided by a nurse.

There is a difference between food/formula and  medical supplies. A conscious, aware person, with knowledge can serve as coordinator.

The lollipop thing I do is something I dreamed up all by myself. I'll need to explain, or me eating anything will look like a miracle. I used to provide early intervention and I also did the job of disabled services coordinator. The lollipop training I do comes from these experiences.

My formula and feeding supplies were once cut off by the government. They required a swallowing evaluation.

I thought that if I could only swallow the formula, then I wouldn't need any supplies. Then I thought, "I can do that, sort of." When I did Early Intervention a few kids had eating problems. I'd use my experience.

________________

https://www.medicinenet.com/oral_aversion/definition.htm

I haven't had food in a long time. Lollipops are used in a patient that can handle their saliva but cannot swallow food. This is why I use lollipops. The goal is only formula intake.

Swallowing would be an outcome. This now happens to be the issue that determines me being vegetative. We'll see what happens.

I have somewhat of a swallow now, but nothing that would pass a test. It needs to be stronger and more consistent. I continue with lollipops.

If you say it's slow...

Theory: Microtubules in the Cerebellum Create Consciousness

     

Why was the cerebellum singled out in a video I watched on consciousness? I know the cerebellum looks different from the rest of the brain. Anyone can see that in pictures.

In the video, it is stated that the cerebellum is unconscious. Well, not totally. I remember that the cerebellum is responsible for breathing and heart beat. A person can hold their breath. That is conscious. I've seen videos of people controlling their heart rate by using meditation.

I'll put the video below.

My brain bleed was deadly because it was in the cerebellum before spreading. The cerebellum is responsible for breathing and heart rate. I stopped breathing before I got to the hospital, but I was at a clinic. Nurses could immediately ventilate me. (I was lucky a paramedic was there.) I was on a ventilator for months after the initial surgery, and I had the ventilator tube in my neck a couple years. There was danger that I'd have to be hooked back up again. I don't have that anymore. The lack of breathing could be due to cerebellar damage.

This video is stating that microtubules in the cerebellum are responsible for consciousness. Microtules are elsewhere, but just those ones.

Here is the long video.

 It gets good at 14 minutes.
__________________________________

Asked the person from the state program. 

Maybe I never came out of a coma. The cerebellum is different. It might be conscious. This is all supernatural. Maybe my intelligence is suppressing unconsciousness like holding your breath. (I think this view is funny, but in the movies possible.)

_____________________

First, I needed to know what microtubules are. What do they look like? What are they made of?

 

These are a couple pictures from Google.

Just looking at them, I am reminded of a Leyden Jar. More speciffically the ancient ones. Those ones are not glass. A Leyden Jar, the ancient ones, are a jar with a metal tube in the middle, and possibly water. They were thought to create electricity. It would have been very low, like a little battery.

The microtubules in the cerebellum reminded me of copper tubes and the cerebellum is a container. They might create some sort of brain power. 

Discovery-of-quantum-vibrations

Something is going on.

Hameroff and Penrose deacribe their theory in many videos available on-line.

_________________________

1-03-2021

You can do experiments at home with the Leyden Jar.

I thought this video was cool until I saw the video after it. In that one, the person pointed out errors. I wouldn't know. Then it dawned on me that both these guys were shocking themselves and this was funny. They would both know that they were working with static electricity and they both kept sticking their fingers in it.

On to the brain.... I'm not saying there is electricity in the brain or that the brain makes electricity. Why do we have an EEG then? It's the shape of the microtubule- a hollow cylinder.

To illustrate this shape of the hollow cylinder producing something without electricity I give the flute.

How Are You?

I get "How are you doing today " First thing I do when I wake is check my feeding tube. If it is in, then I am ok. If my tube is out then you won't hear from me until I get it in and it is taped down. If I can't, it's ER.

"If I get it in"... Excuse me, but doctors have a hard time. Not only is there an outer hole,but an inner hole. I did it once. The GI specialist was shocked.

1-10-2021 

I watch my feeding-tube like a hawk. I got it 18 yrs ago. I should have died 18 yrs ago. It kept me alive for 2 years while waiting for life-saving surgery. I breath on my own; I speak on my own; and I now write on my own. That feeding-tube has  kept me alive. (It's not the same tube. I periodically have it changed to prolong life.)