Do you remember the day you were diagnosed? Perhaps you were scared, felt alone and surely you had tons of questions. Write a letter to yourself for the day you were diagnosed, knowing all you do now.
I kind of remember that day. I shouldn't, but I do. It's one of those paranormal things. I remember the doctor saying there were two kinds of vegetative. (PVS and MCS for those of you who know what those are.) PVS was the more severe one. She felt I would get better care if I was labeled this.
You see I was already borderline. The doctor had trouble deciding what kind of vegetable I should be. All I could do was sit and stare at her. In my mind I was saying, "No, you got it wrong." I still had the AVM in my head at that time. It was due to explode in the future and I would die. That doctor wouldn't know I would have an experimental surgery to remove the AVM.
I shouldn't remember any of that, but I do. I won't write a letter to myself. What has happened has already passed. That can't be changed.
This movie is based on a true story.
The movie is "The Diving Bell and the Butterfly."
The movie is "The Diving Bell and the Butterfly."
There are subtitles as it is in French.
Like this clip, I could only sit and stare when told.
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There is very much similarity in my case to this other case above. That person was the editor of Elle magazine. He had a stroke. He went on to write a book by blinking one eye to a person who took dictation. He had to blink yes or no to every letter in the alphabet said for each word in the book.
The most I ever blinked out at once was a few sentences for my mother to write in a note. Writing like I do now came later after I could move an arm. I use my left pointer finger to hit keys. I haven't done a book, yet. Just these snippets. A book is in future plans, but not for right now.
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