I
have a feeding tube. You have to feed people in comas some way. I give
you the following video not to gross you out, but show you how it can be
done. I have the permanent g-tube that goes in the belly. A hole was
surgically cut in my stomach. The following video shows the nose. I have only seen the nose used in hospitals. A hole is cut in the stomach for longer use. This diet is short-term.
Yes,
I am on a g-tube diet. I have acid reflux, though. I have to use a
formula that tastes good. The reflux will sometimes regurgitate formula
into my mouth. I use Ensure. It's the same kind you buy at the store.
______________________________
What was thought to be permanent in me is turning out not to be permanent at all. I talk now.
Talking has been slow to come. That could be because I do not receive therapy. I only have general knowledge in this area.
This is where it gets sticky, the g-tube is prone to infection. There have been serious, life-threatening infections.
I
do have a weak swallow now. The g-tube doctor wants me in speech in
order to make my swallow stronger. Then I could regularly take Ensure by
mouth. The g-tube wouldn't be needed.
Speech
isn't offered to people in comas. Remember at the beginning I said it
was thought I'd be permanently incapacitated? "What was thought to be
permanent in me is turning out not to be permanent at all." So the coma
that was put on paper doesn't really fit anymore.
People
take one look at me and say there was misdiagnosis. Well that original
diagnosis now impedes me. I can't get speech because I am in a coma on
paper. The g-tube doctor can't coordinate with anybody on making my
swallow stronger so I can take my food by mouth. In this case, speech
becomes medically necessary.
There was a time when there wasn't a swallow. Now there is.
______________________________
I credit this device for giving me a weak swallow. I had no swallow. (This thing isn't even patented, yet...but I got one.)
___________________________
___________________________
UPDATE 12/23/2016
When
I say I have a weak swallow, I can sort of swallow, but the flap to my
airway doesn't close. I swallow food to my lungs. This is why I still
have the feeding tube. At first, I was unconscious and had to be fed. Now,
there is something there, but is not right. What I have could be worked
with through therapy, but Medicare denied that.
No comments:
Post a Comment