Wednesday, November 28, 2012


You won't find this document in any medical record. It's here by chance. During my hospitalization at many hospitals, this was thrown into a box. It was written by my doctor at the time to Social Security. The motivation was money.
You see, as "semi-vegetative" sometimes I was there, sometimes I wasn't. When I  was there, I was fine. My hospital bills weren't being  paid on time. This could easily be fixed by a doctor telling Social Security I was competent to receive my money and not need a payee. The doctor was at-risk of losing me as a patient because of non-payment. If I controlled my money, I could pay a bill on time.


Friday, November 9, 2012

The Bleeding Brain

I don't know how I'm doing it  but I am. Give me a baby with a Grade IV bleed and I'd do the same. It's  just very difficult when it is yourself.

Grade IV bleed - brain bleeds were classified in severity by stating  how many lobes were affected. A "Grade IV bleed" would involve all four lobes. This was the worst of the worst.

Mine would have been classified as such and it is amazing that I am able to communicate this with you.  A Grade I bleed would involve only one lobe and rarely needed intervention.
"Describe the efficacy of early intervention" or something like that was on the Comprehensive Exam for my MA. One of the answers was reducing the disability one full level (ex. Severe to Moderate).
I was Severe and now I am Moderately Disabled.

In my case, that is exactly what I have done. I'm not early intervention. I'm much too old. The practices and techniques need to be looked at with serious consideration of applying those to brain injury.
What is it that  I did? It's not very common.

I was a program manager. Besides my background in development, I knew some OT, PT, and speech. I also had the necessary business skills of a manager. Focus was always on the child as a whole and the interactions with others. I've used the same approach on myself: focused on the big mess of myself (not just PT or speech or any other specific area).

Friday, November 2, 2012

Seeing The Obvious

How could this happen? How about the first person in this video,     Ten years go by and nobody notices anything? In the first, it is 20 years? Nobody noticed anything?

It's obvious I now have brain function. If I don't, then I'd like to know how I'm doing this. Yes, new brain scans will have to be done. The old ones don't hold true to what I'm doing. So far nobody has noticed.
I'm telling people to take notice.

How did I get by? You'd think I would be studied.  That hasn't been the case. That previously has not been the case. Those above people were not studied until discovered. I'm not exactly discovered yet. You did, but not by someone who can study.

"These are not the droids you are looking for." It has been the same with me. Sometimes we are right under your nose.